Saturday, January 7, 2012

"What's Next?" - President Jed Bartlet (The West Wing)

My final day in "The Chair."
It's just under 24-hours since I completed what is supposed to be my final chemotherapy session. I say, "supposed to be," simply because I don't want to count my chickens before they hatch. My oncologist, Dr. Tepler, reassures me time and again that this will be it. Perhaps it's the paranoia of having cancer; the same auto-pilot reaction to any ailment or ache that immediately causes a cancer fighter to assume the worst, or the fact that Murphy's Law has had a nasty habit in the past for playing the "Oh yeah? I've got a curveball for YOU!" game with me. But regardless, I'm cautiously optimistically celebrating.

My father came by at around 8:20 to pick me up and take me to Stamford Hospital's Bennett Cancer Center. We loaded up the car with the usual suspects: My laptop/briefcase, a couple of DVDs including Robin Williams' "Live on Broadway," "The Shining" (my father's never seen it) and "Clockwork Orange" (he's also never seen this, so I figured I'd bring it just in case), my iPod, the yellow blanket my cousin Jon's mom used when she had chemo and has subsequently passed onto various cancer fighters to keep them comfortable during their treatments, a couple of Naked Juices and my laptop lap desk. It seems like I was packing for college, but let me tell you, each and every item serves a purpose.

First, I hadn't had anything to eat or drink all morning. It was another one of those, "Rush, get the kids ready for school and then take care of yourself," mornings, and I was just ready in the nick of time. So, I had to bring the Naked Juice for nourishment. The iPod was meant to bide the time in the waiting area, distract me while I had my finger stick, and fill in some boring moments with some motivational music.

After the finger pricking, Dad and I were walked to the room - in fact, it was the same private room I had with my first appointment. We were full circle. Dad started setting himself up while I set up the laptop to play the DVDs. (We know from experience that most of the DVD players don't work.) The nurse, thankfully, listened to me (unlike last time), and didn't try and go spelunking for veins never tapped before, but went for "Old Faithful." Either the veins have begun to recover, or my nurse continued her magic touch, because I didn't feel a sting from the saline, nor did I taste the metallic-saltiness on my tongue. I didn't even notice the  Decadron.

We popped the Robin Williams DVD into the laptop and thus began our laugh-fest. Thank goodness we had a private room with a door, because the profanity spewing from my laptop had me a bit red in the face - not that I, personally, am that sensitive, but there are so many demographics represented in the halls at the hospital, and folks, undoubtedly, who do not feel that chemotherapy is a fun thing, I didn't want to offend anyone.

At one point, Clarissa, my first nurse at my first appointment, came in and saw Robin Williams. Just as she says, "What a great DVD to watch!" Robin begins a riff about how his friend Lance is in France riding in the Tour after going through chemotherapy. Needless to say, they knew I'm a LIVESTRONG leader, and this got a big giggle from everyone.


Chemo went smoothly, and, now it's post-chemo recovery mode.

One of the next steps, in my case, is going to be hormonal therapy. Typically, that means Tamoxifen. Here's the catch. I don't want to take it. I mean, I really don't want to take it. It will likely put me into early menopause, which isn't exactly a prospect I'm jumping at. I've had enough thrown at me to put my femininity into play this year, had my boobs lopped off and replaced by square-shaped Ziploc baggies while I wait for silicone jelly beans. Not to mention, the side effects of menopause doesn't exactly excite me, either.

I was going to participate in a clinical trial incorporating Metformin, which is a drug used in treating diabetes that has been successful in helping prevent some of the problems with Tamoxifen and menopause. I was really looking forward to it, after being told I was an ideal candidate. That is, until I was told that my tumor was 0.175cm too small to participate with the new guidelines for the trial.

So, now I'm screwed.

What's next? A long, hard talk with Dr. Tepler to figure out a way to get me involved with Metformin, because I am not going onto a regiment that will put me into early menopause, with all the bells and whistles that accompany it.

My body. My cancer. My treatment.

So, what's next?

Wednesday, January 4, 2012

When I grow up, I want to be a Superhero... Who knew?

When I was a really little kid, I wanted to be Spiderman. When I was a little girl, watching Linda Carter week after week, I wanted to be Wonder Woman. And when the movie came out, I wanted to be Supergirl. In high school, when I saw Michelle Pfeiffer don the latex, I wanted to be Catwoman (of course, meeting and selling Eartha Kitt muffins every morning for a summer contributed to that fantasy). In college, I was thrilled to dress my friend Charity, who was playing Princess Ida, like Xena in our production of the "Three Princess Project" And I always tell my kids not to make me angry, as they wouldn't like me if I got angry...

Ok. So I DO own Wonder Woman/Supergirl boots.
I bought them the day I was diagnosed - I was already
channeling my inner super heroine. Glad they followed
in my footsteps.
I never, sadly, developed any superhuman strength, or super powers. I shared nothing in common with any of these heroines. They were unattainable beacons of womanhood. Good examples, of course, but they existed on a plane that was far beyond reach.

Or were they?

A brilliant ad campaign is launching in, of all places, Mozambique, promoting self-breast examinations as a means to increase early detection of breast cancer. Associação da Luta Contra o Câncer in Mozambique is launching the following campaign of super heroines giving themselves breast exams in, what I think is, one of the most eye-catching, powerful campaigns I've seen in a long time.

It doesn't play on fear, shock, sentimentality, or the color pink. It focuses on powerful women. Strength. It humanizes these super heroines that so many of us grew up looking up to, and generation upon generation admire at some point in their lives, and shows us that, despite all the supernatural powers in the world, cancer can touch us all. Despite the cloaks, spandex and genetic mutations, we are all still women.

Today, I feel like Wonder Woman. I may not break out the starry bloomers and tiara, but I realize that I faced a dubious super villain, and I'm beating it down.







Tuesday, January 3, 2012

Chemo Round 3 Day 18: Embracing My Inner Sloth


Ah, yes, post-surgery/chemo couch potatohood has struck, and my waistline, ability to move, etc, has paid the price. I'm on the verge of becoming one of those people who has to be surgically removed from their sofa as their flesh has interwoven with the upholstery. Help me! Help me!



As always, feel free to donate to my fundraising efforts benefiting LIVESTRONG: http://laf.convio.net/goto/RicaRocksAustin2012


Wish I'd thought of that...

My cousin, who took those lovely portraits the day before my surgery, sent me the following cartoon:


I've since emailed it to Dr. Nordberg and informed him to stock up on pink Mardi Gras beads...

(Cartoon is on xkcd.com)

Sunday, January 1, 2012

Start 2012 off on the right foot!

If there was one lesson I learned last year while organizing events, it was how important sponsors have been with expenses, promotion, etc. I am incredibly grateful to all of our sponsors from last year, and we are now looking for our 2012 sponsors!

Of course, our 2011 supporters are invited to participate again this year, but some of our events are getting bigger, and that means we need more assistance!

In order to ensure that the bulk of the registration fees for these events go to LIVESTRONG, we are not only looking for sponsors who will make a large donation to our Lance Armstrong Foundation Challenge account, but businesses that might be willing to cover some of the expenses like insurance, t-shirts, etc.

If you are an individual, but know of a company that might be interested in this opportunity, please direct them to this blog. Or, you can sponsor us in honor of a loved one or anonymously - however you feel comfortable!

Sponsorship Opportunities are as follows:
Picture

Title Sponsor for the Season - $3,000 Cash Donation
(1 sponsorship available)


  • Title sponsorship. The (INSERT NAME) ROCK the RIDE & RUN Benefiting the Lance Armstrong Foundation and The (INSERT NAME) ROCK the RIDGE Benefiting the Lance Armstrong Foundation
  • Logo on all printed materials including: t-shirt, handbills, course maps, registration forms
  • Extra Large Logo with link on web site and welcome message on home page
  • Recognition in all e-communications from January  to October
  • Headline recognition in media and advertising (press releases, fact sheets, etc). Must be secured by January 31, 2011
  • Prominent event day signage including
  • 2 mentions per month from January to October on Facebook fan page
  • Promotional item in goody bag
  • Free registration for all employee participants from your organization at all events
  • Vendor booth at event
  • Announcement recognition
  • Race day start speaking opportunity
Seasonal Platinum Sponsor - $1,000 Cash Donation
  • Presenting sponsorship opportunity at all events
  • Large Logo on printed materials including: t-shirt, handbills, course maps
  • Large Logo with link on web site
  • Recognition in six e-communications from January to October
  • Company feature in one newsletter
  • 1 mention per month from January to Oct on Facebook fan page
  • Company included in media and advertising (press releases, fact sheets, etc). Must be secured by  January 31, 2011
  • Opportunity for event day signage at vendor booth and victory party tent
  • Vendor booth at all events
  • Promotional item in goody bag
  • Free registration for employee participants

Event Gold Sponsor - $750 or Pay for the Cost of Event T-Shirts

  • Large Logo on printed materials including: t-shirt,  handbills, course maps
  • Large Logo with link on web site in the 3 months leading up to the event
  • Recognition in three e-communications regarding the event in the 3 months leading up to the event
  • Three mentions on Facebook fan page in the 3 months leading up to the event
  • Vendor booth at event
  • Opportunity for event day signage at vendor booth and registration tent
  • Promotional item in goody bag
  • 5 Free registrations for employee participants

Event Silver Sponsor - $500/Pay for $500 of Expenses (Insurance, Port-a-Potties, etc)

  • Medium Logo on printed materials including: t-shirt
  • Medium Logo with link on web site in the 3 months leading up to the event
  • 2 mentions in e-communications regarding the event in the 3 months leading up to the event
  • 2 mention on Facebook fan page in the 3 months leading up to the event
  • Vendor booth at event
  • Opportunity for event day signage at vendor booth
  • Promotional item in goody bag
  • 5 Free registrations for employee participants

Event Bronze Sponsor - $250 or $250 In-Kind Donation towards Raffle

  • Small Logo on printed materials including: t-shirt
  • Small Logo with link on web site in the 3 months leading up to the event
  • Vendor booth at event
  • Opportunity for event day signage at vendor booth
  • Promotional item in goody bag
  • 3 Free registrations for employee participants

Event $100 Cash or $100 In-Kind Donation towards Raffle

  • Extra Small Logo on printed materials including: t-shirt
  • Extra Small Logo with link on web site in the 3 months leading up to the event
  • Promotional item in goody bag
  • Vendor booth at event

Event $75 Charitable Contribution

  • Business Name on t-shirt
  • Promotional item in goody bag

To become a sponsor, please contact us and let us know which sponsorship package you are interested in.

Saturday, December 24, 2011

Chemo Round 3 Vlog Digest...

Chemo Round 3 Day 9

Chemo Round 3 Day 6: Stiff but hopeful

Chemo Round 3 Day 3 Part I

Chemo Round 3 Day 3 Part II

Chemo Round 3 Day 1 Part I

Chemo Round 3 Day 1 Part II

Organizing My Life's Timeline... on Facebook

Recently, Facebook upgraded/downgraded their format (up or down depending on how you feel), and now you have the option of displaying a Timeline. In classic form, events are marked in a running timeline from birth until the present. Facebook has tried to automatically take status updates and photos that were uploaded/posted to the timeline, but of course, there are some photos that may have been from events much earlier in life that need to have their dates updated.

While waiting for some emails from work, I decided to hop onto Facebook and start going through my albums, updating photos with places, dates and defining "life events." In so doing, I ran across photos from the first LIVESTRONG Challenge I participated in - the 2010 Philadelphia LIVESTRONG Bike Ride. Some of those photos were tagged with the name, "Ryan Weiss," my friend whom I was supposed to meet at the Challenge, but he'd just left the hospital and was unable to attend. Sadly, Ryan passed not long after thanks to a tumor that came back with a vengeance. It was the first time that I'd seen Lance in person, it was my first time riding in a peloton of that size, and my first taste of what the LIVESTRONG organization was capable of doing.

As I click through photo after photo in my Facebook album, I'm struck by the final photo, with the caption, "I gots me a secret LIVESTRONG admirer."

As I've blogged about in the past, the yellow roses are handed out to cancer survivors as they cross the finish line. Survivors go through a designated chute so that they can receive this honor and an extra special welcome. In August of 2010, I did not go through the Survivors Only chute, as I was riding in honor of my friend, Ryan Weiss, and I had not had cancer. So I thought.

But, as you can see in the photo above, when I returned to my bike after, what had been a most wet afternoon, someone had very purposefully woven a yellow Survivor rose in my front wheel. And, I highly doubt that they could have gotten my bike mixed up with someone elses. My bike has bright purple tires and brake/shifter cables, deep purple water bottle cages, and "I Ride For" stickers for Ryan and my grandmother up and down the frame.

At the time, if course, I was tickled by the idea that someone wanted to give me a rose. Was it from an admirer? A LIVESTRONG friend who was a Survivor but hadn't had the chance to say goodbye? Someone who thought my bike was cool?

But, now, part of me wonders, "What could this person have known or sensed that I didn't? Do Survivors somehow have a magical 'cancer detector,' and were somehow warning me of what was to come one year later?"

There has been no question that, in many ways, the universe was sending me many messages over the past year, and, looking at this photo, perhaps this was the first visual 'sign' that I was destined to earn a rose.

Without question, I would not have gotten that fateful mammogram last June had it not been for LIVESTRONG.

For that, I ask that you consider making a donation to LIVESTRONG.

To do so, simply go to http://laf.convio.net/goto/RicaRocksAustin2012 and click on "Donate to Rica!" on the left. If you need to mail in your donation, just click on "Read More" towards the bottom of the screen and then you'll see a link for a printable form.

I hope to bring in 100 donations for LIVESTRONG by end of day Sunday, 12/25/2011 in my effort to raise $25,000 for the Lance Armstrong Foundation. Donations of any size are very welcome.

Thank you and happy holidays!