Tuesday, February 18, 2014

People are Stupid

Yes, yesterday was one of those days.

I got a call from a recruiter - not a recruiter with whom I've ever done business - who found my resume somewhere online. She wanted to get some more information about me about a possible job in an area to which, out of desperation, I'd travel, but I wasn't thrilled. So, as we were reviewing my resume, she had a few questions.

She said I had excellent credentials, and then she asked me why I was not PMP certified. I explained that the jobs that I had simply didn't allow the extra time to study and take the test. As we were talking, we discussed my last full-time, permanent position. I was telling her about the ups and downs experienced, how there were periods where we weren't getting paid, and how I was being scrutinized, even though I was a full-time, salaried employee, over hours I had worked at home and things just degenerated from there. She asked why I had been working from home. I explained that I had breast cancer, and some of that time was between when I was laid off and rehired, so I got some procedures done as part of my cancer treatment.

At that point she said, "Well, why didn't you take advantage of your time 'time off' and go get your certification since you weren't doing anything?"

Since this was over the phone, I couldn't simply reach across the table and smack her upside the head. Nor could she glean from my eyeroll that she asked an utterly stupid, obnoxious and foul question.

Golly, lady, it might have been that I was too busy having my breasts lopped off, poison injected into my body every couple of weeks for a few months straight, and then having all kinds of infections, skin grafts and other organs removed on a whim.

So, I grit my teeth, smiled, and explained that I think she needs further sensitivity training.

She asked, "Why?"

Really? I explained that her response was callous, ignorant, more than likely illegal, surely a form of harassment and discrimination. She said I was overreacting. I asked her if she would like to find out when I contacted LIVESTRONG for their best legal referral, and the lawyer and I would file to sue her ass.

She told me she couldn't represent me because I was too unprofessional. I told her she was damned right she couldn't represent me - she was clearly too incompetent.

Then I called her boss.

I haven't heard back from her boss, or from whomever she directed my call (it could have been to the janitor, for all I know). I kind of wish that I did, so I could let him know that he hired a complete moron, and even though I don't have formal recruiting experience, I, or my cat, Samson, could do a better job than this woman, and I certainly know what is an appropriate response to a candidate explaining that they were getting cancer treatment and working from home during their "time off" and what isn't. I'd love to tell him a few other things while I was at it, as well.

Sadly, it appears all I can do is vent here on the blog.

So there it is.


What frightens me, though, is how many recruiters from the past couple of years have been equally as ignorant? How many, in discussing my resume, credentials, survivorship, etc, or even Google searches, actually think what this woman was thinking?

How many hiring managers learn about my cancer and think that I could have been more "productive?"

How many are apprehensive because they wonder if I'll need treatment again? How many somehow think that the cancer is contagious, or was brought on by something I did? Are recruiters and hiring managers still that backwards in their thinking that I'm a pariah? Really?

I don't hide my cancer past - I wear it as a badge of honor. I'm not going to hide it. It doesn't own me, It's not who I am. It's not my work history or my capabilities. I still worked daily in my hospital room, from my bedroom, my loft office, and even my office office, when I had work that required my attendance in-person. And it was 2 years ago.

So who cares? What's the problem? Why make me feel "less than" because I fought a disease and came out the other side, stronger, more intent on working a job for which I'm passionate?

Funny, I thought those were good things to have. Bottom line, to all recruiters and hiring managers that have a problem with the fact that I'd had some sick leave, took some time off a couple of years ago, and used my time between gigs to address some of my health issues...



Sunday, February 16, 2014

Jewish Guilt is bad enough... but Jewish Survivor's Guilt? Fuggadaboudit

Imagine you're in a car. Someone else is driving. You and your friends are all in backseats. There is absolutely no difference between how you are sitting or they are. You all have your seatbelts on. You're all doing what you're supposed to do. Hell, we'll even throw on helmets, knee pads and shoulder pads for extra protection. And the driver suits you all up with bubblewrap suits. You're all equally taking the same exact precautions.

Now, cars hit your car simultaneously - you and your friends are struck with the same amount of force, and the car rolls. By the time it is all over, the car settles. You open your eyes, and no one else but you and the driver make it out alive.

Why?

And, just to make it worse, as you sit in your hospital bed for mere observation while your friends funerals are being planned, you see on your social media feed that several other friends, who were also in cars, with the same gear you had on, and the same impact, didn't survive. And your friend's wife. And another friend's wife. All of whom you've spoken to about all the precautions you were taking in the car.

Why?

That's pretty much how this week has been. Past month. Past year. Cancer fighters in my life, LIVESTRONG related and not, that I was surrounded by in one way or another, that shared breast cancer specifically, have been dropping like flies. And I'm starting to feel like last man standing. And I don't like it.

My friend, and fellow LIVESTRONG Leader's wife, Judy, broke my heart. Scott is a cancer survivor himself, and his wife was diagnosed and taken within what seemed to be a breath. Ashleigh Moore, an amazing man, cancer survivor, and fighter, and an International LIVESTRONG Leader who accomplished more than any leader I know has for the cause, was taken from us last week.

Those losses are difficult to bear, as it just seemed some of the most amazing people run out of time. And seeing your friend is pain, losing a colleague, sucks. But their cancer was very different from mine.

But Suzy's loss...

Suzy Zeffren Rauch was a firecracker. She was full of life and ruach (spirit) going back to when I first got to know her in Young Judaea. I admired her from afar, as to me, she was like the sun - as much as I wanted to be her, not like her, but be her, I feared that if I got close, I couldn't withstand the amazingness of Suzy. She was popular (far more than I), she was talented in voice and ability, she was charismatic, she had a way of capturing attention from everyone in a room and making them smile and feel good about themselves. She was a leader. She was an example. She was clearly an amazing friend to everyone around her. She intimidated the bejeezus out of me because I so wanted to be like Suzy when I grew up within the movement. She was the embodiment of what I thought female Judaeans should be.

Fast forward several years, and I have just gone through diagnosis and my double mastectomy. I get an encouraging post from... SUZY ZEFFREN RAUCH! I had friended her, because I loved her so much back in the day, and I was sure she'd accepted my friend request on Facebook out of courtesy. But she was posting to me. And then I got a private message from her (I have to paraphrase, as Facebook seems to have obliterated some of my conversation history, but... ):
Rica, I was wondering if I could ask you a question?
Of course, Suzy, what is it?
I've been following your journey on Facebook and your blog. I just found out that I also have breast cancer. What do I do?
After the initial shock of seeing that Suzy Zeffren Rauch followed my story and my blog - she liked me! She really liked me! - the fury of knowing that someone as amazing as Suzy was being touched by this evil disease made my blood boil. And then, I knew I could finally do something that I'd wanted to do years ago - be Suzy's friend.

From that point on, we weren't Judaeans anymore. We weren't just people with lots of mutual friends. We became members of a secret sisterhood. We shared anxiety and tips and support when hair was lost and came back. Ironically, my hair has grown in just like Suzy's - from very loose waves and/or pin straight to dark blonde, rich ringlets.

We seemed on parallel paths at one point in our chats, and then the chats stopped. I wasn't seeing her in my newsfeed as often. Correspondence came to a trickle.

I, honestly, had assumed that she'd fallen into the same communication rut that I had post-treatment - when you come out the other end, you have to suddenly play catch up with reality.

Then, on 2/5/14, I saw an earth-shattering post from my friend pop up that Suzy was going into hospice. (Any children reading this, cover your ears.) What the fuck?! Hospice?!? It has to be for a longer-term recovery from a procedure - they almost put me into hospice after I'd been in the hospital for 4 weeks with the infection because I was taking up a bed in the hospital and required longer-term care vs. hospital care, but once my condition turned around, I was able to just go home.

I messaged our mutual friend, Benji Lovitt, to find out what was happening. He responded very simply, "She just went on hospice care. I think people are now fearing the worst. Hope you're well." (Kids, you'd better still be covering your ears.) Holy shit! Yes, Benji, I'm fine, thanks for asking, but HOLY SHIT! What in the hell?!?

I went to her page to make sure I was reading Benji's message right, and sure enough, we were being asked to post photos and stories about Suzy for her. Her timeline, and her husband's, was ticking nearly every other second with a new photo, and a new story being posted as I was reading. Dozens, and dozens, and dozens were coming out of nowhere with an outpouring of memories and encouragement.

I messaged her, simply, "Sending you LOVE!" praying to get a response. But none came.

Just a week after I sent her that message, on February 12, Suzy was gone.

I haven't been the same since. I'm going to address her loss momentarily, but allow me to reflect here a moment. Aside from the grief associated with her loss, there is an overwhelming guilt that hits me every time I learn a friend or loved one has died of cancer. That, "Why me?" but worse - "Can't you take me instead?" I know I have many more people out there who would be happy if I were, and even benefit in my death. But no one "wins" with Suzy's death. No one benefits. It rips people apart. She was so much more than I ever was. And, it's ok, that many of our mutual friends think the same thing - I get it. And I'm not writing this to have a flurry of, "Don't say that! You're special, etc." I know the reality. I'm half the woman, mother, leader, educator and friend that Suzy was on a bad day. She has a husband who adores her. She has two, young daughters that benefit far more than my son, for example, whom I've failed time and time again. At least if it were me, my son might not remember everything that he hates about me, but remember the good. I have no husband to widow. Of course, I know I have my daughter, and family and others that would be hurt, but I'm seeing those same people devastated by Suzy's death.

Don't read into this as a suicide note - that's not what it is, either. But I can't bare the idea of walking into a room with some of our mutual friends, and Ron, now, having survived the same disease that killed his wife, our friend, and look anyone in the eyes. I'm marked with shame and guilt that I lived and Suzy died.

Oh, and Suzy's voice. In my mind's ear, I remember how beautiful her voice was. I would listen intently as she, and Kera Rennert, could weave harmonies at camp. I would mimic and memorize their melodies, not daring to upstage them, but to learn from their knack for finding the angelic sound in the gaps, so I could do the same when they weren't at camp anymore. Suzy's voice. Wow.

I was just getting reacquainted with her, this time as equals, and I'd begun to fall in love with her as a younger sister does an older sister, all over again. And then it stopped. Short.

I hate this disease. And, in many ways, I hate surviving it. I hate outliving people like Suzy.

I look to Suzy to remind me to be thankful. Bless whoever it was that posted this amazing version of Modeh Ani sung by Suzy.

As a tribute, expect to hear my daughter and me singing this at her Bat Mitzvah.

This is the voice of an angel.


A fund has been set up in her memory at the camp that she loved, and where she was wed:
http://cyjtexas.org/suzy

By Ilana Zeffren:

Read more about Suzy here:
http://thelilmamas.com/in-loving-memory-of-suzy-rauch/
http://motherblogga.com/just-between-us/2014/2/14/for-suzy.html

Tuesday, January 14, 2014

Misdirection

If you follow any number of higher profile cancer warriors - from bloggers to doctors to celebrities - you may have heard about the articles that appeared in The Guardian (now down) and the New York Times by a married couple of "journalists" - a term I use very loosely for the Kellers. The wife got information from a cancer blogger via private messages with or without full disclosure that they were not only the subject of an editorial, but that it was using her blog as a means to "debate" the "ethics" of blogging about one's cancer journey, particularly if the end is sooner, and more grueling, than one might hope. It was a despicable piece. What was worse was that the "author's" husband then, in the New York Times, essentially re-wrote his wife's article, even admitting to loosely "perusing" the cancer fighter's blog, and stating that because his father-in-law died one way, it was "unethical" and "unbecoming" to share one's journey any other way.

I lost my mind. I really did.

I'm not going to speak for all of us cancer fighters that choose to share our journeys and fights through blogs and the like. I'm going to speak for myself, because I know there are a lot of folks out there who feel the same way, and to educate the morons like this husband/wife pair who, rather than ask why, suppose they know best and then impose their beliefs as the moral standards.

First, I was a LIVESTRONG Leader first, which meant that my involvement in the cancer community was that of a leader publicly. So, it was natural that I share my fight in the same manner - it would have been hypocritical of me to be asking those fighting cancer in my community to come out and talk about their journeys when I was silent about mine.

Second, from a practical standpoint, I have friends, families and colleagues all over the world. However, I only have one set of hands, one mouth, and two phone lines. Unless I had absolutely nothing to do all day but to call, email, write and Skype with every individual that wanted to be kept up to date, I had to find a more universal means of letting folks know what was going on - my blog accomplished that. My fellow LIVESTRONG Leaders, high school friends, college buddies, family, colleagues etc, could simply check out my blog if they couldn't connect with me, and I could rely on that one outlet to share the basics. Obviously, I spoke with folks in other forums as the relationship and events dictated, but this was a resource for anyone to check in and catch up.

Third, there were days when I didn't want to talk to anyone. There were days I didn't want to see anyone. There were days when I didn't want a dialogue - I wanted a monologue. I was too uncomfortable to have the patience to deal with responses. I wanted to just get things off my chest, share my thoughts, and that was it.

Fourth, I didn't know if I was the only one who was experiencing what I was experiencing. I shared things I lived through hoping to get more experienced cancer fighters to respond with advice, information, etc. And it worked.

Fifth, I did it to share so that other women who were diagnosed similarly knew what the general path could be like, in a non-clinical fashion. I wanted to share the funny experiences and thoughts I had in hopes that I could make someone going through this farcical situation laugh when they needed. I wanted to share the absurdity so that I could waylay someone else's fears.

Lastly, I honestly wanted to lay down in writing what I was thinking in case a) I forgot what my journey was years from now, b) the cancer and treatment didn't go well and affected my memory, c) I needed to document what tests and treatments I had in case I had to provide a doctor my medical history for future treatments and d) in case I didn't survive my cancer, my children could read in their mother's words what her journey was. I wanted to leave a legacy of my voice. I wanted to tell my own story so they wouldn't have to try and remember on their own.

I assure you, if my tale ended grimly, I would have continued to write just the same.

You do not have the right, however, to judge how I share my cancer story. You have the right not to read it, you have the right to say that you wouldn't do the same. But you do not have the right to tell me that what I am doing is not "ethical." Keeping silent is unethical. Judging a woman who is dying and is reaching out for support is unethical. Talking about the realities of this disease is not.

Good for you, Lisa. So many of us have your back.

Thursday, January 9, 2014

Is there such a thing as "Cancer Free?"

In the week or so it's taken me to recover from the emotional roller coaster my "Big C" Marathon caused me, I think about what a friend reminded me when I expressed my reborn anxiety - "But, Rica, you're 'Cancer Free.'"


Is there ever such a thing as being "Cancer Free?" It's not like I'm a can of soda - when I have zero sugar in my ingredients, and there is a governing body that approves of the label, and I'm declared "Sugar Free," therefore I feel sugar free. I would just BE sugar free. 


The trouble is, I remember what it was like to truly BE Cancer Free.

Maybe it's a little more like being decaffeinated coffee - I once had caffeine, but it has been stripped out of my being. Caffeine was inherent to my being coffee, but after an extraction process, I'm now lacking my caffeine, left a sad, watery shell of who I used to be.

So would that really make me "Decancerated Rica" as opposed to "Full Strength Rica?"

Still, no. Because the coffee only went through two states - Caffeinated, then Decaffeinated.

I actually went through FOUR states - 1) Rica 2) With Cancer, Blissfully Unaware Rica, 3) Full-on Cancer Rica, 4) Now "Cancer Free" Rica. But, note, State 1 does NOT equal State 4.

I will never, EVER be "Rica" - with no state of cancer at all. State 1 will never exist for me again.

I have been permanently changed. I have the scars to prove it. There isn't a morning that goes by when I am not immediately reminded of the fact that I had cancer in my body. Reminders surround and are within me. From the fact that the house has been under 60 degrees every morning I awake this week since the polar vortex came into effect and, while I have goosebumps all over my body, my breasts are just there and my nipples no longer react nor do they perk up - because they are numb chunks of thigh skin, tattooed in a faded pink. When I rub my eyes, and begin to scratch itches on my shoulders, and I brush against my cleavage, the skin on the top of my right breast senses my finger tips normally, but on the left side, there is an irritating tingle, barely cognizant of the fact that it's not an unpleasant scrubbing action triggering a response, but a gentle touch.

My bones and joints ache more than ever in this chilly weather. I cannot tolerate cold the same way I used to before chemo. While I was always a "Summer Baby," and I hated Winter, I could endure it. My elbows didn't ache from the core. My knuckles didn't stiffen. My spine wouldn't surge with prickly cold. But it does now.

Once in the shower, I realize that I really don't have to do a self-breast exam anymore, even though it's become second nature. Instead, as I begin the futile, and irrelevant exam, I feel the horrible horizontal scar that I had assumed would have completely disappeared on each breast where my areolae used to be. I feel the strange pucker around that line, so the breast skin doesn't hang correctly on the lower right half of the right breast, and there is still a tough, thickened patch of subsurface scar tissue on the inner side of my left breast.

As I sit on the commode, facing the cabinet with glass doors in which I kept my feminine products, I see the package of maxi pads I'd picked up right before my oopharectomy, out of habit, forgetting that just a couple of days later, would become irrelevant and would sit dormant unless a visitor needed one, or my daughter has her first "visit from her cousin." I see the last of my tampons, which haven't budged since April.

When I make it back to my room, and I sit at my vanity, I measure the length of my hair. Now, it's just tickling my shoulders. I pull at the longest piece and measure to see how long the curl now unfurls, and to see if it hits my shoulder blades yet. I shake my head, as I still have a way to go. I reach back and see if I can reach the back of my hair. It's nowhere to be found. I have at least another year to grow my hair to the length where I felt comfortable.


Before

After (Straight)

After (Curly)
I try and remember what tasks I have to do today, and I find that I can't remember what they are. I take a minute and try and remember what day of the week it is. I have to resort to peeking at my iPad or iPhone to check the calendar. Since chemo, I still find that I have trouble remembering which day of the week it is. (Sorry, Dr. Tepler, you can't tell me there's no such thing as chemo brain.)

I look in the mirror. My eyebrows have grown back, and they are starting to get unruly. But I'm scared to tweeze them. And, now that they are back, I find I can't pencil them in as well as I used to when there were no hairs there. Ironically, my eyebrows look far less realistic now when I try and do them than they did when I had no eyebrows.

I see a double chin where there wasn't one before. I see a puffy version of myself. When I started chemo, I was told to eat when I could, as likely, I would lose my appetite. Ironically, of all the cancer patients I knew, my appetite never died. In fact, I ended up gaining weight. Whether it was from the steroids I was put on heading into chemo, the fact that I was pretty much "benched" from physical activity after I tore mastectomy souchers and gave myself an infection, and never recovered from the atrophy that induced, or that my energy post-chemo has never recovered, I am in a terrible physical condition.

For the first time in my life, I'm not physically fit. I was never a twig, but I was always fit. Not since chemo.

And, at this point, it isn't even a full hour since I've awoken, and I've recounted how many reminders that I had cancer?

How can that be called "Cancer Free?"

This year, I will be "Cancer Free" in March. Oh really?

So, here's what I've realized:

I don't care if you survived the surgeries and treatments a day, a week, a month, a year, or a decade ago - we are never "Cancer Free" again. We may be "Decancerated," but we'll NEVER be "Cancer Free" again.

Sunday, December 29, 2013

A Big C-ancercation

I'm now discovering that it has been too long since I blogged. Or put together a LIVESTRONG event, for that matter. I'm a bad blogger. I'm a bad LIVESTRONG Leader.

I've had myself convinced for the past few months that it was due to family matters that had to be addressed, which is true. I've told myself it was because I'm not in chemo, so there is nothing else to share. I've used the excuse of a new job, busy life, new hobbies, etc.

But, early this morning, as I wrapped up a binge on the Showtime series "The Big C," which came out almost a year earlier to the day that I had my double mastectomy, I had an epiphany. Well, I had a few epiphanies.

Epiphany #1: I needed a C-Cation.

Subconsciously, I think I "took the year off" of cancer, particularly after Mary was rediagnosed with Stage 4 and then when she passed away. By no means do I blame her, but I think I had to take a break from all things cancer-related, aside from my mandatory surgeries and appointments. But why?

Epiphany #2: Fear

Yes, I'm a "survivor." Yes, I acknowledged guilt over surviving when friends like Mary, Ryan and others ran out of time and died. But I either never wanted to or never realized just how (pardon my French) just how fucking scared I am of cancer. I'd numbed myself to the anxiety of going back to Dr. Tepler's office time and time again. It creeps out every time I second guess Dr. Tepler's report that my counts and blood work are fine. Every time Dr. Tepler tells me that my requests for an MRI and scansare unnecessary   because all signs are positive that I'm cancer free.

Epiphany #3: Hypocrisy

Throughout this blog, and my cancer journey, I have stated and restated that you have to trust your gut. But have I trusted my gut? Lately?

Here's the reality. I don't know that I can trust my gut right now. I can't decipher between Fear and My Gut anymore. Why do I say this? My Gut keeps telling me to tell Dr. Tepler to wake up and give me a godammned body scan because I "know" the cancer is back. But at the same time, isn't that a natural Fear for cancer survivors? That terror-inducing nickname, "Mets." Not the second-best New York baseball team (Yankees rule), but metastases. See, if you get Mets, you're automatically Stage 4. Plus, my chances of survival plummet from the 80% or better to numbers that aren't even worth putting out there.

I've been in complete denial of this. Of the fear. Of my gut.

All of this has resulted in my LIVESTRONG apathy this year. Guilt of hypocrisy and not living up to the STRONG in LIVESTRONG. I was afraid. I felt weak. I felt like I betrayed the message of LIVESTRONG.

But worse, I have been terrified of the cancer returning.

Blogging, for me, was a means of expressing what I was feeling and sharing how I was feeling. But I had made myself numb to how I was feeling. I had to be. Right now, I don't want to leave my bed. I'm paranoid about my cats' affections - is Samson just maturing from kitten to cat and less restless, more affectionate, and that's why he is sleeping with, next to and sometimes on me? Or is his instinct kicking in like "Death-enny" in "The Big C?" Why has Schmooie, who has been like Sean - living outdoors for weeks, even months at a time, despite having a home, decided to stay, not only indoors, but within inches of my head - either behind my pillow or dwelling on my nightstand at eye level, with little interest of going outside, where she loves? She's 15 years old - and now she decides to be an indoor cat? Or is it the same instinct Thomas had?

How could I write my blog when I couldn't even acknowledge what I was feeling? If I wrote it, it was real. If it was real, I'd have to deal.

So, I blame "The Big C." How dare you expose us like that? To the world? To ourselves? Did you have cameras set up in my home? My head? Is Adam modeled on Zach, who may not have acted out sexually as Adam did, but in other ways? How dare you make your character the same age as my son? Why couldn't Cathy have been single? I'm now furious I had to be my own Cancerierge - I had to be my own Paul, with a splash of my Dad and My Rock in the mix.

And worse, how dare you film in my backyard? Sometimes within yards of me while I was going through chemo? Filmed on backroads that I know like the back of my hand? And did you base some of Dr. Sherman on Dr. Tepler? Seriously?

Sometimes, we project a lot of ourselves on shows and things we are watching on TV and on screen. But this... how could I not? Particularly when so much of the footage was filmed where I would go for treatment, for recreation, etc? When Cathy experienced chemobrain at the Stamford Mall, I felt sick to my stomach. The minute that the elevator went up in the background - the elevator I had been riding since I was 8 and the Mall first opened - my stomach fell. When they shot the vertigo shot on Cathy's way up to the 7th floor, I got lightheaded. As she was speeding down Long Ridge Road near the old GE headquarters, my first instinct was to blurt out, "If you're going to hospice, you're facing the wrong direction - the fastest route is in the opposite direction - you missed your turn."

But this show, even though Cathy had a very different cancer, a very different treatment, this was too close to home - literally and figuratively. I'm very confused, outraged, appreciative and terrified now.

Clearly, I'm going to be calling Dr. Tepler tomorrow and fighting to have a full body scan, if possible. I'm going to call a dermatologist. I'm questioning every mark on my body, every ailment, every ache, every pain, every dream, every thought... is any of it an indication that the cancer is back?

I know so many people who I know have remarked that I'm so strong, that I've inspired them, etc, but when I said months ago that I'm just me, I wasn't kidding. I'm terrified. How can I inspire others to be strong when I feel so weak right now? And I'm not even in active treatment?

So, thank you, Laura Linney, Oliver Platt, Gabriel Basso, Phyllis Somerville and Darlene Hunt, for fucking me up. Thank you for holding up a mirror that I feared as much as death. Thank you for last night's night sweats, fear and anxiety induced dreams, and forcing me to second guess every, "You're cancer free," report I've gotten from Dr. Tepler.

And thank you for making me blog again.

Wednesday, June 19, 2013

Life's full of surprises... as is your abdomen.

So, yesterday was the oophorectomy and the reconstruction continued (part 5?). I think at least 4 prep nurses came in, which was fine, since Dad and I are old hands at the pre-op prep. My name is Rica Mendes, I was born on June 20, and I'm here for thus-and-such procedure. I so wanted to tell one of the nurses, "My name is Inigo Montoya, you killed my father, prepare to die," but the last nurse to come in didn't seem like the "Princess Bride" type.

As always, Dr. Nordberg came in, on time, looking dapper in his suit and tie, pleasant demeanor, purple marker in hand. I felt like a road atlas after he was done with me - circles and squiggles all across my chest, under my arms, and a bit below. Dr. Ratner never came in - she had a procedure earlier in the morning that was running late. The anesthesiologist came in and explained he'd give me a TAP block, and additional local anesthesia to my abdomen to ensure the least amount of pain.

I never get over the walk into the OR. Not the actual walk through the hallway, but the entrance into the OR. The room is never as dark and calming as on "Grey's Anatomy." It's bright, you can see the sound-proof ceiling tiles, the floors are white with minimal splatters of iodine staining. Various nurses are attending to tons of trays, and the operating table is there, with arms out, a Hannibal Lecter looking mask sitting where your head goes, and the blue cloths all around. I get that flash of, "Why do I feel like I'm being mounted on a horizontal cross?" when the nurses help me up onto the table and put my arms out to my sides and tell me not to move. There is nothing to do but to stare at the ceiling and the four operating room lights with those weird handles in the middle of the bulbs. This anesthesiologist didn't play music like the others, so I can hear the clanging of tools and the tell-tale, "Ok, we're going to give you a little something in the IV and then some gas and you'll fall.... " And that's about it. I lose all sense of time. I lose all sensation. And I wake up in that awful fog.

I hate coming out of anesthesia. As a result, I'm usually fast to come out - once I start waking up, I'm up.

But not yesterday. I was in that loathsome fog for way too long. I was too sleepy for too long. I had no compunction to move. I couldn't stay awake. I was too unaware of where I was, and what was going on around me. I hated it. I forced myself to try and snap out of it. I saw my friend's little sister, Kara, a recovery room nurse, and called her over. I made her talk to me. But that wasn't enough. I felt bloated - like the blueberry girl in Willy Wonka. I was sore. Something wasn't right. I was parched. The saliva glands in my mouth were in pain. My lips were sticking too much to my teeth. My throat felt way too dry and scratchy. My dad and son kept coming in and out and I couldn't keep my eyes open long enough. I felt clammy. I felt sweaty.

I felt like shit.

Something wasn't right.

I asked to go to the bathroom, and I was walked to the bathroom. I could barely feel my feet. I didn't know if I was upright. I was overly disoriented,. This wasn't right. I got to the bathroom, and all I felt was cool. I started to feel a bit like myself. I didn't even have to go - I just needed to move. Walking back to recovery felt better.

It was too hot in the recovery room. It was too cozy. It was like a womb. I had to get out. Finally, we left, but I still couldn't wake up fully. I dozed off in the CVS parking lot as my dad and son got my meds. The warm, summer breeze felt good and lulled me back to sleep repeatedly.

Ironically, once home, I couldn't sleep. Percocet, Ambien and more, and I couldn't sleep. It was awful.

And today, forget about it. I felt inflated - still. My stomach hadn't been this rounded since I was pregnant. Something was just off. I spent time in the hammock. I couldn't go to the bathroom. I couldn't move without pain - pain focused on the right.

Finally, it got to be too much. I broke down and cried. I called the doctor's office, furious, that I still wasn't "right," that I was still bloated, that I still couldn't go to the bathroom after 2 days, and that she didn't bother to see me before or after the surgery. I was neglected and something was wrong.

After too long, earlier this evening, the surgeon called me. She explained that they inflated me with gas to be able to see my abdomen clearly, and that the gas would pass. She also explained that she had come to see me in recovery - she even drew me a picture. I have zero recollection. That sent me into a panic.

But then, the fun part - they removed a 3-4cm cyst along with my right ovary. That's not small. That's big. They were going to biopsy my ovaries anyway, but holy crap! I cyst! I panicked again.

Dr. Ratner explained they decided to check out my liver and other organs. All was clear. But that cyst on the right side was not easy to remove (hence, the extra pain). But the good news - it was benign. Everything was benign.

So I am further in the clear. But far less than whole.

Good? Bad?

Right now, I'm on Percocet, so I'm in no position to make any sound judgements.

Friday, June 14, 2013

Stop riding my coat tails, Ms. Jolie!

Just like she copied my voluptuous, succulent lips, she had to go ahead and lop off her perfect breasts, just like I had to a couple of years ago. Granted, she decided not to wait until she heard the words, "You've got cancer," to do it, but still. I guess imitation is the sincerest form of flattery, so I'm flattered.

But, now, she's going all "Single White Female" on me with getting an oopharectomy.

Oh, no, Angelina-chica, this is where I draw the line.

I was due to get spayed months ago, it's just that my insurance got all ferkakta. And now, you come along, and you think you're getting your ovaries removed before me? No way. Get in line sista!

So, just to make sure you don't keep trying to lay claim to territory I've already staked, I'm having my ovaries removed on Monday.

Oh. And I'm having my boobs tweaked, too.

Beat that, Miss-Right-Leg-Show-Off!


Stupid BRCA genetic defect... #FUCANCER