I love Blondie. She was blonde, gorgeous, feminine but lethally fierce. She was untouchable. Would that we were all that indestructible.
But we aren't. This medical parasite keeps eating its way into our lives and silently strikes harder and faster the more chances it gets. Cancer is voracious. Unless you put a stop to it right away, it seems to not relent until it has consumed you.
My chemo buddy, whom I've mentioned had a recurrence and metastases, took a terribly sudden turn during the Christmas holiday. I heard from her sister that the cancer has seemingly spread. Discussions of hospice are arising.
There is nothing more than I'd like to do than to visit her, but we, her friends, are being asked to remain supportive from afar.
How can we? What can we do from a distance while she is in a hospital bed? I want to hold her hand, make her smile, tell her jokes, reminisce with our friend and give her comfort. From afar, what I can I do? Send her a card? Flowers? We're even advised not to call!
I've begged her family to reach out, to build a support network - for her and for themselves - but they refuse. If I could drag Doug Ulman personally to her bedside and Chris Brewer to her family's home, I would. But they don't want the support.
I find this terribly perplexing. Why would they want to fight this battle without anyone there? Without any support or guidance? Is it denial? I don't get that sense. Is it fear? Fear of accepting my friend's illness? I could understand that with her first bout, but this is a different animal.
I know that I'm the LIVESTRONG Leader, but that doesn't mean that I have all the answers. Aside from praying, "sending good vibes," and continuously asking if it's ok to visit yet, what more can I do?
Showing posts with label support network. Show all posts
Showing posts with label support network. Show all posts
Wednesday, January 2, 2013
Tuesday, September 25, 2012
Why do I support LIVESTRONG? Community
On Sunday, close to 100 people turned up at West Rock Ridge State Park, including racers and spectators, to participate in the ROCK the RIDGE benefiting LIVESTRONG Mountain Bike Race. Folks gathered from Maine to New York to New Jersey and everywhere in between. Of course, many may not have cared less what the cause was, it was merely the series finale of the New England Championship Series for the Eastern Fat Tire Association. But others turned out to show support.
During the racers' meeting, when I reminded folks of the cause and why it was so significant, as we, in EFTA, lost a beloved member to cancer a couple of years ago, there was a tangible shift in mood. Everyone was still excited, but there was a sense of intensity that seemed to hover in the air.
It's not the first time I've experienced that.
When I decided, long before I was diagnosed, that I was going to ride 200 miles to support LIVESTRONG a couple of years ago, I was more excited about the adventure than the cause. That is, until I learned of a couple of friends who were fighting cancer. Then, it hit me, when I found myself struggling, that I was doing this for something greater than me. And, as I rode, and I chit-chatted with other riders along the way in the New York City Century Tour, and told them why I was riding, their smiled turned serious - not angry, not sad, but intense, and we rode a little faster.
Online, on Twitter and Facebook, LIVESTRONG Leaders, registered Team LIVESTRONG members and others in the "community" form a support network. Again, before I was diagnosed, I merely mentioned that I was doing a ride for LIVESTRONG, and all of a sudden, there was a throng of survivors that were connecting with me. I joked that I felt in with the "in" crowd without having cancer. (Oh, the irony.)
But I'd found a community.
When I was diagnosed, I thanked my lucky stars I was already plugged into that community, though, there is no doubt in my mind, that had I come in off the street and asked for membership, I would have been welcomed with open arms. Why? Because I see it done. With everyone that says, "I need help - I have cancer," or, "My dad has cancer," or, "I just lost my cousin to cancer," a note of encouragement is sent by someone at LIVESTRONG, fellow leaders, etc.
So to, on Sunday, at the end of the race, there was a community - even though it was a one-day community, it was there.
There are rare instances in one life where, blindly, you are accepted into a group. And there is no time as important as during a battle with cancer when that is needed.
LIVESTRONG is a global community of caretakers, survivors, supporters and leaders.
To show your support for this community and the cause, please consider a donation to my LIVESTRONG Challenge account: HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
During the racers' meeting, when I reminded folks of the cause and why it was so significant, as we, in EFTA, lost a beloved member to cancer a couple of years ago, there was a tangible shift in mood. Everyone was still excited, but there was a sense of intensity that seemed to hover in the air.
It's not the first time I've experienced that.
When I decided, long before I was diagnosed, that I was going to ride 200 miles to support LIVESTRONG a couple of years ago, I was more excited about the adventure than the cause. That is, until I learned of a couple of friends who were fighting cancer. Then, it hit me, when I found myself struggling, that I was doing this for something greater than me. And, as I rode, and I chit-chatted with other riders along the way in the New York City Century Tour, and told them why I was riding, their smiled turned serious - not angry, not sad, but intense, and we rode a little faster.
Online, on Twitter and Facebook, LIVESTRONG Leaders, registered Team LIVESTRONG members and others in the "community" form a support network. Again, before I was diagnosed, I merely mentioned that I was doing a ride for LIVESTRONG, and all of a sudden, there was a throng of survivors that were connecting with me. I joked that I felt in with the "in" crowd without having cancer. (Oh, the irony.)
But I'd found a community.
When I was diagnosed, I thanked my lucky stars I was already plugged into that community, though, there is no doubt in my mind, that had I come in off the street and asked for membership, I would have been welcomed with open arms. Why? Because I see it done. With everyone that says, "I need help - I have cancer," or, "My dad has cancer," or, "I just lost my cousin to cancer," a note of encouragement is sent by someone at LIVESTRONG, fellow leaders, etc.
So to, on Sunday, at the end of the race, there was a community - even though it was a one-day community, it was there.
There are rare instances in one life where, blindly, you are accepted into a group. And there is no time as important as during a battle with cancer when that is needed.
LIVESTRONG is a global community of caretakers, survivors, supporters and leaders.
To show your support for this community and the cause, please consider a donation to my LIVESTRONG Challenge account: HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
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