I love Blondie. She was blonde, gorgeous, feminine but lethally fierce. She was untouchable. Would that we were all that indestructible.
But we aren't. This medical parasite keeps eating its way into our lives and silently strikes harder and faster the more chances it gets. Cancer is voracious. Unless you put a stop to it right away, it seems to not relent until it has consumed you.
My chemo buddy, whom I've mentioned had a recurrence and metastases, took a terribly sudden turn during the Christmas holiday. I heard from her sister that the cancer has seemingly spread. Discussions of hospice are arising.
There is nothing more than I'd like to do than to visit her, but we, her friends, are being asked to remain supportive from afar.
How can we? What can we do from a distance while she is in a hospital bed? I want to hold her hand, make her smile, tell her jokes, reminisce with our friend and give her comfort. From afar, what I can I do? Send her a card? Flowers? We're even advised not to call!
I've begged her family to reach out, to build a support network - for her and for themselves - but they refuse. If I could drag Doug Ulman personally to her bedside and Chris Brewer to her family's home, I would. But they don't want the support.
I find this terribly perplexing. Why would they want to fight this battle without anyone there? Without any support or guidance? Is it denial? I don't get that sense. Is it fear? Fear of accepting my friend's illness? I could understand that with her first bout, but this is a different animal.
I know that I'm the LIVESTRONG Leader, but that doesn't mean that I have all the answers. Aside from praying, "sending good vibes," and continuously asking if it's ok to visit yet, what more can I do?
Wednesday, January 2, 2013
Friday, December 21, 2012
Struggling to find my "What's Next?"
As many of you know, several months ago, I parted ways with my previous employer in Stamford. Things were just spiraling on a number of levels, and a change was necessary. I'd begun freelancing with the hopes of finding the "right fit" for a permanent position, and that journey is still continuing as I'm still working on contract. Needless to say, that takes a lot of time. And, as many of you also know, my previous employer's "situation" allowed me quite a bit of freedom during treatment and the standard work day, so my apologies that my blog hasn't been more consistently updated.
The whole cancer thing, as previously discussed by me and others, forces one to reflect upon their life. You ponder what could have been. You examine what you're currently doing. You explore the possibility of the future, if and when, you come through the cancer experience.
This is often riddled with the insecurity of the unknown, particularly as you learn that friends and peers that joined you in your Class of 2011-2012 Cancer University have had to fight again, or worse, have died. These were your lab partners, your study buddies, your lunch mates. Some were the girls down the hall you run into once in a while brushing teeth, while others are that girl you buy your coffee from every morning. But to think, when you go back to your reunion, that they never graduated, had to go back, or are just never going to be there again, forces you to wonder about yourself.
In the past couple of months, I learned that my Chemo Buddy is fighting again. Today, I learned that an amazing fighter, Tiffany Costa, whom I tried to help find access to an elusive drug thanks to the stupid pharmaceutical shortage driving her to the international Doxil black market, died last week.
These women are, were, my age. We were fighting breast cancer together, in very different ways. No amount of money, resources or effort seemed to dictate success. Tiffany raised over $50,000 to help her with her medical situation when I first met her. And she had a long fight ahead, including figuring out how to transport the drugs she managed to secure overseas before the seller raised the fees again.
My other friend has a supporting family, but has chosen to continue her fight quietly.
And here I am. Alive. No signs of metastases. Declared NED.
But I'm uneasy. I'm uneasy about my status. I'm uneasy about bills. My job. My career.
So, I've been exploring. I joined First Descents this summer and rediscovered physical strength. I'm going to go to Hawaii in the Spring with Athletes For Cancer to surf - fulfilling two dreams - to go to Hawaii and to learn how to surf. I pulled out the sewing machine for the first time in years to make clothing - to finally put all those sketches, ideas, fashion wish-lists to the test and throw my anxiety about crappy sewing skills to the wind. So, almost every day for the past 2 weeks, I've created a new garment. Nearly every day I've worn at least one of my creations. (After all, it's only fabric. If I screw up, who cares? I make it a few sizes smaller and give it to my daughter, or I rip the threads and go again.)
I'm finally taking out the sketchbook and I'm building and making the things I'd put off for a rainy day.
Here's the rub, however... Unless I get onto Project Runway and win, I doubt I can make a living making clothing. And, unless Martha Stewart dubs me her successor as Queen of the Crafts, all the candles and plaster work in the world isn't going to pay the bills.
And, as long as I am trapped in a COBRA plan that costs significantly more than my mortgage, that offers sub prime coverage, and I receive no benefits from work, I'm just malingering in my career.
I proverbially drop to my knees and beg someone to just bring me on full-time already. Enough with the freelancing. Enough with the contracting. It ain't for me. I have enough instability to deal with. I can't stand not knowing at the end of the month whether or not I'm being "renewed," if I have to choose between COBRA and mortgage again. I refuse to withstand further interviews where I rock them, but one moment in haste as frivolous as sneezing in the wrong direction can cause the employer to opt not to make the offer they were going to a second ago.
I ask you, what's next for me? Because I'm still lost. And the more I'm lost, the more scared.
And, as irrational as it may seem, I often wonder if I don't get hired full-time soon, with a permanent job, will the cancer come back first?
The whole cancer thing, as previously discussed by me and others, forces one to reflect upon their life. You ponder what could have been. You examine what you're currently doing. You explore the possibility of the future, if and when, you come through the cancer experience.
This is often riddled with the insecurity of the unknown, particularly as you learn that friends and peers that joined you in your Class of 2011-2012 Cancer University have had to fight again, or worse, have died. These were your lab partners, your study buddies, your lunch mates. Some were the girls down the hall you run into once in a while brushing teeth, while others are that girl you buy your coffee from every morning. But to think, when you go back to your reunion, that they never graduated, had to go back, or are just never going to be there again, forces you to wonder about yourself.
In the past couple of months, I learned that my Chemo Buddy is fighting again. Today, I learned that an amazing fighter, Tiffany Costa, whom I tried to help find access to an elusive drug thanks to the stupid pharmaceutical shortage driving her to the international Doxil black market, died last week.
These women are, were, my age. We were fighting breast cancer together, in very different ways. No amount of money, resources or effort seemed to dictate success. Tiffany raised over $50,000 to help her with her medical situation when I first met her. And she had a long fight ahead, including figuring out how to transport the drugs she managed to secure overseas before the seller raised the fees again.
My other friend has a supporting family, but has chosen to continue her fight quietly.
And here I am. Alive. No signs of metastases. Declared NED.
But I'm uneasy. I'm uneasy about my status. I'm uneasy about bills. My job. My career.
So, I've been exploring. I joined First Descents this summer and rediscovered physical strength. I'm going to go to Hawaii in the Spring with Athletes For Cancer to surf - fulfilling two dreams - to go to Hawaii and to learn how to surf. I pulled out the sewing machine for the first time in years to make clothing - to finally put all those sketches, ideas, fashion wish-lists to the test and throw my anxiety about crappy sewing skills to the wind. So, almost every day for the past 2 weeks, I've created a new garment. Nearly every day I've worn at least one of my creations. (After all, it's only fabric. If I screw up, who cares? I make it a few sizes smaller and give it to my daughter, or I rip the threads and go again.)
I'm finally taking out the sketchbook and I'm building and making the things I'd put off for a rainy day.
Here's the rub, however... Unless I get onto Project Runway and win, I doubt I can make a living making clothing. And, unless Martha Stewart dubs me her successor as Queen of the Crafts, all the candles and plaster work in the world isn't going to pay the bills.
And, as long as I am trapped in a COBRA plan that costs significantly more than my mortgage, that offers sub prime coverage, and I receive no benefits from work, I'm just malingering in my career.
I proverbially drop to my knees and beg someone to just bring me on full-time already. Enough with the freelancing. Enough with the contracting. It ain't for me. I have enough instability to deal with. I can't stand not knowing at the end of the month whether or not I'm being "renewed," if I have to choose between COBRA and mortgage again. I refuse to withstand further interviews where I rock them, but one moment in haste as frivolous as sneezing in the wrong direction can cause the employer to opt not to make the offer they were going to a second ago.
I ask you, what's next for me? Because I'm still lost. And the more I'm lost, the more scared.
And, as irrational as it may seem, I often wonder if I don't get hired full-time soon, with a permanent job, will the cancer come back first?
Monday, December 3, 2012
Samson
Perhaps it was inheriting who was the world's sweetest cat in the world, Samson, from my grandmother once she died, or maybe it was the notion of a woman being able to captivate someone to the point that they could be entranced without magic and fall victim to her, but the story of Samson & Delilah always intrigued me. I still remember reading the story over and over again in the children's bible my parents' got me when I was young.
A little over a year ago, it took all my strength to shave my head after watching my own personal Delilah, breast cancer, start to rip the hair from my head. I'd grown my hair to be the longest it had been for several years. I'd had the intent to never cut it again, let along shave it ever. But I had to. It was too heartbreaking to see it fall out like withered, fallen soldiers going into a suicide mission.
Unlike when one usually cuts one's hair, the expectations of having significant length more than a full-year from when you shaved your head, my hair is struggling along. I have "cute curls." I can flat iron my hair to make it flat and spiky, but I still can't pull it back into a proper pony tail. I can't feel it on the back of my neck.
And there seems to be an uncanny correlation between the day I cut my hair, at the LIVESTRONG Challenge 2011, and the last time I felt strong and fit. Now, I feel weak. I'm too easily winded. My energy is shot, and hasn't been anywhere close to where it was, no matter what drugs and supplements I take.
Is the growth of my hair directly related to my strength and energy? Perhaps. With short hair, on the bike, outside, I just feel cold. I can't stand cold air hitting my head. But I look forward to feeling the wind rustling my full head of hair.
My hair is just below my ears now. I only have 2-3 feet to go, now. I'll see you in 5 years.
A little over a year ago, it took all my strength to shave my head after watching my own personal Delilah, breast cancer, start to rip the hair from my head. I'd grown my hair to be the longest it had been for several years. I'd had the intent to never cut it again, let along shave it ever. But I had to. It was too heartbreaking to see it fall out like withered, fallen soldiers going into a suicide mission.
Unlike when one usually cuts one's hair, the expectations of having significant length more than a full-year from when you shaved your head, my hair is struggling along. I have "cute curls." I can flat iron my hair to make it flat and spiky, but I still can't pull it back into a proper pony tail. I can't feel it on the back of my neck.
And there seems to be an uncanny correlation between the day I cut my hair, at the LIVESTRONG Challenge 2011, and the last time I felt strong and fit. Now, I feel weak. I'm too easily winded. My energy is shot, and hasn't been anywhere close to where it was, no matter what drugs and supplements I take.
Is the growth of my hair directly related to my strength and energy? Perhaps. With short hair, on the bike, outside, I just feel cold. I can't stand cold air hitting my head. But I look forward to feeling the wind rustling my full head of hair.
My hair is just below my ears now. I only have 2-3 feet to go, now. I'll see you in 5 years.
Wednesday, October 17, 2012
Statement
This is my one and only statement regarding the events of this week. I will stand, as I have always stood, with Lance Armstrong in his global fight against cancer. This man, and the foundation he began and built, has stood by me and my family, when I needed support the most. He instilled an amazing devotion in the employees, volunteers of Livestrong and his Livestrong Leaders. While his title may have formally changed, to me, and many others, he will always be "Boss" in our initiatives to support and raise awareness for cancer survivorship.
Thursday, October 4, 2012
I have a second chance. Cancer isn't always as kind.
Some of you know that I had a deadline the other day to meet a $5,000 goal for my LIVESTRONG fundraising. I didn't make that goal. As it prohibited me from being able to fulfill a promise to my daughter, I was pretty disappointed.
On a personal level, and please do not take this the wrong way or as me being ungrateful, it was most disappointing to have worked so hard this year, while fighting cancer actively, running 2 major events that beat last year's numbers, and to have still fallen short. Previous "angel" donors weren't able to give me a boost this year, and I'd made the mistake of thinking that one of my events would have been bigger than expected, and I didn't run with a couple of smaller events.
In the past, I would have beat myself up into a pulp, cried my eyes out, and second-guessed every decision I made that caused me to fail. I'd have then turned my self-loathing into anger and lashed out at every single individual like a petulant child.
You do realize that when I say, "In the past," I'm referring to just over one year ago, right?
That bratty single child in me is, at this moment, lying face down in her bed, kicking and screaming, tearing at pillows, refusing to come down for dinner and making the lives of all around her a living hell. But she's a much smaller part of me.
Well, maybe not. This goal was a big one. I was resigned to the fact that $25,000 was going to be out of reach and gave in to the $15,000 goal. As time ticked away, and the donations just didn't come in the way that they did last year, I started to panic, but LIVESTRONG set a special incentive at the $5,000 mark that made it "ok" to "settle" for $5,000.
I assumed, making an ass out of you and me, that the money would just come in effortlessly. Until the deadline passed, and I was still short.
Unlike cancer, which rarely gives second chances, LIVESTRONG gave an extension to those of us reaching for the $5,000 mark.
I now have until 5pm Friday, October 5, 2012, to finish raising $5,000.
As of right now, I am $1,500 away from the mark. That seems like a lot, doesn't it? But, here's the way I see it.
I have 1,716 Facebook friends. I have 678 connections on LinkedIn. I have 1,212 Twitter followers. Of course, there is quite a bit of crossover, so let's figure that there are 500 "real" people all told.
If I do the math correctly, if all of the 500 "real" people I presume are, in fact, "real," that means each would only have to donate $3 in the next 24 hours in order to meet the goal.
That's it. It's totally do-able.
So, now, I just have to figure out how to reach those 500 "real" people.
Are you one of the "real" ones?
On a personal level, and please do not take this the wrong way or as me being ungrateful, it was most disappointing to have worked so hard this year, while fighting cancer actively, running 2 major events that beat last year's numbers, and to have still fallen short. Previous "angel" donors weren't able to give me a boost this year, and I'd made the mistake of thinking that one of my events would have been bigger than expected, and I didn't run with a couple of smaller events.
In the past, I would have beat myself up into a pulp, cried my eyes out, and second-guessed every decision I made that caused me to fail. I'd have then turned my self-loathing into anger and lashed out at every single individual like a petulant child.
You do realize that when I say, "In the past," I'm referring to just over one year ago, right?
| Don't I look like myself? |
Well, maybe not. This goal was a big one. I was resigned to the fact that $25,000 was going to be out of reach and gave in to the $15,000 goal. As time ticked away, and the donations just didn't come in the way that they did last year, I started to panic, but LIVESTRONG set a special incentive at the $5,000 mark that made it "ok" to "settle" for $5,000.
I assumed, making an ass out of you and me, that the money would just come in effortlessly. Until the deadline passed, and I was still short.
Unlike cancer, which rarely gives second chances, LIVESTRONG gave an extension to those of us reaching for the $5,000 mark.
I now have until 5pm Friday, October 5, 2012, to finish raising $5,000.
As of right now, I am $1,500 away from the mark. That seems like a lot, doesn't it? But, here's the way I see it.
I have 1,716 Facebook friends. I have 678 connections on LinkedIn. I have 1,212 Twitter followers. Of course, there is quite a bit of crossover, so let's figure that there are 500 "real" people all told.
If I do the math correctly, if all of the 500 "real" people I presume are, in fact, "real," that means each would only have to donate $3 in the next 24 hours in order to meet the goal.
That's it. It's totally do-able.
So, now, I just have to figure out how to reach those 500 "real" people.
Are you one of the "real" ones?
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Monday, October 1, 2012
Why do I want you to support LIVESTRONG? Read on...
First, the kind folks at the Journal News ran an article as a follow up to our October Breast Cancer Awareness program last year... It's a really lovely read - thank you.
This weekend, my friend from Boston, Lynda Beaulieu-Fresolo, came down. After a late start, we hit the road in Norwalk and rode a little over 22 miles. A twitchy left ankle and a left knee that wasn't feeling great prompted me to suggest that we turn back instead of continuing forward, reaching 40 miles. We averaged just under 11.5 mph - my goal was 12-15 mph.
There was a time I'd beat myself up about it, but Lynda told me to just keep working, and LIVESTRONG has taught me that no fight, nor victory, should be considered too small to be a success. My tush hurts, my legs are stiff, and I know I have a lot of work ahead of me.
But I'm doing it.
I wish I could say my fundraising this year was just as successful. I've scaled back my goal from $25,000 to $15,000, and now I'm hoping to hit $5,000.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
I need to meet that $5,000 goal today so I can be a part of the LIVESTRONG 15th Anniversary Celebration Gala in Austin, TX. It's the least amount I've raised for LIVESTRONG since I started fundraising. It's just been one of those years.
I'm more than halfway there. I have a check en route that will help. But I'm still not going to make it with that check alone. I need your help.
By my account, if each of those that reads my blog today could donate $25, I'll meet the $5,000 goal today. It only takes 2 minutes. But your donation wouldn't just help me with my goal, it will help thousands of people like me, my mom, my aunt, my friend and so many others fight and find the strength to keep looking forward.
Please consider donating today by clicking the link to my personal page below. The funds we raise together allow LIVESTRONG to give survivors the services, information and direct support they need to tackle cancer on their terms. And 100 percent of what you donate for the LIVESTRONG Austin Challenge will go directly to these vital efforts.
Thanks for your support.
LIVESTRONG,
Rica
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
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Friday, September 28, 2012
Why do I support LIVESTRONG? I like beer.
If you like beer, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
No, seriously, if you like beer, donate now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
See, there's a secret we LIVESTRONG Leaders share with Lance, Doug and the crew at LIVESTRONG. You're not really funding cancer survivorship support. Your investing in a future bar.
I mean, the layout is there, with a dance area, a stage, a kitchen, and plenty of space for mingling. The location in Austin, TX is perfect. The artwork is on the walls and there is plenty of parking. It's perfectly accessible by train, too. And did I mention the outdoor dining and drinking area? Oktoberfest will rock.
Still think I'm kidding? I'm not.
There are only 2 things standing between us, today, and this bar.
1) It houses this pesky thing called the Lance Armstrong Foundation.
2) Cancer
Confused? Allow me to explain...
By definition, "We (LIVESTRONG) provide support to guide people through the cancer experience, bring them together to fight cancer—and work for a world in which our fight is no longer necessary."
"... A world in which our
fight is no longer necessary."
Lance, Doug, and everyone who is employed by LIVESTRONG, to an extent, prays for the day they that all employees are given the option to accept a severance check and a pink slip or to take on new careers as bartenders, bus boys, waiters & waitresses and bouncers when the Lance Armstrong Foundation closes its doors and is converted into a bar because it will mean that cancer has been extinguished from the planet. The war will have been won. The only thing left for the folks who worked at the Foundation to do will be to find a new career and send themselves off with a brewski while Lance and his buddies turn LIVESTRONG Headquarters into the biggest, baddest bar Texas has ever seen.
So, if you hate cancer, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If you like beer more, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If you love Shiner Bock, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If you love Guinness, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If you like Michelob, Bud, Miller, or Rolling Rock, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If microbrews like Fat Tire, Brooklyn Brewery, Dogfish Head, and He'brew, are your thing, then donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
And, if you never, ever, ever, want to hear me ask you to donate to LIVESTRONG right now, but you'd much rather hear me ask you out for a brew with the same frequency, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
No, seriously, if you like beer, donate now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
See, there's a secret we LIVESTRONG Leaders share with Lance, Doug and the crew at LIVESTRONG. You're not really funding cancer survivorship support. Your investing in a future bar.
I mean, the layout is there, with a dance area, a stage, a kitchen, and plenty of space for mingling. The location in Austin, TX is perfect. The artwork is on the walls and there is plenty of parking. It's perfectly accessible by train, too. And did I mention the outdoor dining and drinking area? Oktoberfest will rock.
Still think I'm kidding? I'm not.
There are only 2 things standing between us, today, and this bar.
1) It houses this pesky thing called the Lance Armstrong Foundation.
2) Cancer
Confused? Allow me to explain...
By definition, "We (LIVESTRONG) provide support to guide people through the cancer experience, bring them together to fight cancer—and work for a world in which our fight is no longer necessary."
Lance, Doug, and everyone who is employed by LIVESTRONG, to an extent, prays for the day they that all employees are given the option to accept a severance check and a pink slip or to take on new careers as bartenders, bus boys, waiters & waitresses and bouncers when the Lance Armstrong Foundation closes its doors and is converted into a bar because it will mean that cancer has been extinguished from the planet. The war will have been won. The only thing left for the folks who worked at the Foundation to do will be to find a new career and send themselves off with a brewski while Lance and his buddies turn LIVESTRONG Headquarters into the biggest, baddest bar Texas has ever seen.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If you like beer more, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If you love Shiner Bock, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If you love Guinness, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If you like Michelob, Bud, Miller, or Rolling Rock, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
If microbrews like Fat Tire, Brooklyn Brewery, Dogfish Head, and He'brew, are your thing, then donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
And, if you never, ever, ever, want to hear me ask you to donate to LIVESTRONG right now, but you'd much rather hear me ask you out for a brew with the same frequency, donate to LIVESTRONG right now.
HTTP://LAF.CONVIO.NET/GOTO/RICAROCKSAUSTIN2012
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